Noelle's Light Co-Founders Jodi & Alex Laughlin
"In 2016, we became two of the estimated 4,000 parents per day in the US that receive a fetal diagnosis. We were 20 weeks pregnant with our daughter, Noelle, when we found out something was wrong.
Our baby was later diagnosed with a rare, life-threatening fetal condition called Hydrops Fetalis. In an instant, our pregnancy once full of joy and excitement turned to fear and confusion. Our once playful debates about nursery paint colors had abruptly shifted to tearful conversations about treatment options and specialist care.
In that moment, we had no idea the physical, emotional, and financial mountains we had yet to climb in this journey.
We spent over two months and nearly $7,000 in out-of-pocket expenses seeing specialists and undergoing multiple in-utero fetal surgeries requiring overnight hospital stays. We did everything we could to save our daughter's life.
Noelle Philomena Laughlin was born and died on December 13, 2016 at 30 weeks gestation. Her life has inspired us to light a path of hope and support for other families facing a fetal diagnosis and its aftermath, no matter the outcome.”
How We Help Families
Treating a fetal diagnosis can cost families thousands of dollars in out-of-pocket expenses that they may not be able to afford.
Noelle's Light provides eligible families up to $5,000 in financial assistance
If you are a family in need of help, or an institution that cares for fetal families, contact us to learn how we can lend a hand.
Noelle's Light provides a platform for families to share their unfiltered journeys of hope, struggle, triumph, and despair.
Not only can it be therapeutic and empowering, but it may strengthen someone else in hearing your truth.
Follow along to hear these stories, or drop us a line to share yours!
We understand that there is a lot to balance when navigating a fetal diagnosis.
Noelle's Light has a network of resources to help families navigate ALL aspects of their journey - emotional, physical, logistical, and more.
Learn about these resources here, or contact us to be a part of our network.
Our mission is guided by the facts about fetal diagnoses and families' ability to face them.
in the US are affected by a fetal syndrome each year.
4,000 parents per day
in the US receive a fetal diagnosis.
40% of Americans
if faced with an unexpected expense of $400, will need to take on debt, or simply cannot cover the expense.
is the estimated average out-of-pocket cost for families treating a fetal diagnosis. These costs include travel, housing/hotels, copays & uninsured medical costs, childcare, lost wages from unpaid time off work, and funeral costs,